Posted By Ed B

I'm in the reception area with Scherie (share ee, not scare ee) and she's had the radioactive injection.
She's waiting for them to come and take her for a brain scan of the dye's flow without siezure activity.

This picture will be laid over the other from last week to see the difference in an attempt find the area that is causing her problems.
If they do find such an area, they will then determine whether surgery can cut it out successfully.
i suppose "successfully" has a lot of implications.
There actually migtht be a trade-off in functionality over being seizure free.

Anyways, that's the latest on that.

 

 

 


 
Posted By Ed B

Thursday, I was returning from work and decided that I need not stop by the house on the way to the hospital.
I took a route recommended by a co-worker that cut 10 miles off the trip.
It also put me in the path of tornado activity.
The weather was wierd, but not exceptionally "dangerous".
I wasn't aware of the tornado alert.
Almost to the hospital, a flash of lightning went off and I thought "cool".
You know how you can count to fix the distance to the lighting?
The thunderclap was immediately after the "l" of "cool".
The concussion startled me.
It was as if a large hand hit the roof of my truck.
I went into the hospital with sirens going off and as I approached the reception desk to get my parking ticket validated I saw that a crowd was watching a large screen TV.
More accurately they were watching the large red area that represented the tornado alert.
It surrounded Ann Arbor.
When I got off the elevator on Scherie's floor, I saw the halls packed with beds and patients. Some were obviously recent recipents of brain surgery.
I sat with her in the hallway for an hour or so until the all clear was given, which was after we had heard that Dexter (less than 10 miles away) had suffered terrible damage.
The tornado had then taken the path I had come to work on and headed towards the home of the friend who had recommended that route.
He was spared

Each night I've "slept" in a recliner next to Scherie's bed and gone home to Shower and Shave, then proceed to work.
Friday, I came to her room to find her bed empty and made. Kinda scary at first, but that's when I discovered they had taken her to the nuclear lab. Sounds wierd, "to the nuclear lab".

The purpose of Scherie going in to the hospital was to observe her having a seizure and immediately inject her with a radioactive dye.
They then wanted to repeat the procedure without a seizure and overlay the mapping of her blood flow.
Friday afternoon, Scherie being low on her meds but not exhibiting seizure activity externally, the EKG showed that she was indeed exhibiting seizure activity internally,
Since this was the best they could hope for this trip, they went with the dye at one of the EKG "peaks" and did the scan.
She will later go in for the second scan as an outpatient.
Thank you from both of us for your concern and prayers.

I'd like to say something about the sense of community here in the blogosphere.
There are a number of people I've never met in person and have only interacted with on line.
Some more recently than others.
I've prayed for some of these people and they've returned the favor.
Some have had employment, health or even spiritual concerns and I've allowed myself to be emotionally connected to them.
I appreciate the sense of community.

Thanks again.


 
Posted By Ed B

Readers may remember that my darling wife has epilepsy, the result of brain surgery in the 70's.
Since then, she's been on medication that helps a lot. For years she's had recurring petit mals.
But for the last three years she's had an occasional grand mal resulting in me calling an ambulance and on more than one occasion she was admitted for days because of the valium the EMS administered to suppress convulsions.

A week ago Monday, I called and told her that I was leaving work. She said we need lettuce. I stopped and got some. When I got home, I stayed in the truck finishing a radio show. Can you feel the suspense building?

When I opened the back door, it was like walking in on a crime scene.
Scherie was laying on the wood floor in front of the fireplace.
There was blood smeared everywhere: floor, walls, her.
Furniture was tipped over, a kitchen cart was in the middle of the kitchen, papers strewn everywhere.

I went to her side and held her and talked to her, trying to get a response.
She had gashed her arm and blackened her eyes.
I had told myself I would not call EMS again, preferring to drive her.
Her neurologist had given me some Adavan for an occasion like this, but I couldn't get it in her.
Sometimes she comes out in a spacy way that tells me she's still not right and going to be leaving again.
I could not get her to the car and called EMS. I told the tech (most know us already, but he was new to us) to avoid Valium at all costs.
He said that he had a valium/adavan mix and would administer that only if necessary.
It was.
We got to the emergency room and she shortly started coming around, having burned through the drug quickly, but they wanted to hold her for a CT scan because of the head-banging.
We got home about midnight instead of three days later (thank you Jesus).

Tomorrow we go back to University of Michigan Hospital, where they will monitor her again as she has a seizure.
Last November they did this with electrodes on her scalp, hoping to find the source of the trouble.
The detection was overwhelmed by the electrical activity and it was spread over the area where some of her brain had been removed years ago.
The hope is that this time, when she has a seizure (she's reducing her meds tonight), they will inject her with a scarce radioactive dye developed by the Mayo clinic only recently (that replaces an even scarcer dye that is unavailable). The Mayo dye is not as efficacious as the other (maybe 90%), but something is better than nothing.
The dye will allow them to trace blood flow around the area in question so that they might find something to cut out, removing the source of the problem.
They've done extensive psychological and speech pathology testing so that id they do surgery at a later date based on this testing, they'll know the extent of any damage they've also done, and plan therapy accordingly.
Prayers would be appreciated (unless you're a wiccan or adherent of the flying spaghetti monster cult).


 
Posted By Ed B

Scherie's been scheduled for a while to go into the U of M Neurology/Epilepsy clinic for observation.
The deal was that eventually she'd have a seizure and they'd catch it on EEG.
We checked in yesterday morning (Friday) at 5:30 AM for the MRI.
That took a couple hours. Scherie slept through it.
About 8:30 we went to get breakfast in the hospital cafe and then went up to the epilepsy lab to get her scalp wired.
They had a monitor hooked up to check the skin resistance as each node was attached.
Then they did some preliminary checks for response by strobing her face while her eyes were closed, asking her to open and close her mouth, etc.
We then waited til 6 PM for a room. We got a private room, which was not the original plan.
The original plan therefore was not very well thought out, given what would happen later.
Scherie had her evening and morning meds reduced and skipped her afternoon and evening.
Pastor Gregg and Cheryl stopped by and we talked til about 8.
We prayed that Scherie would have a seizure soon and that it would satisfy the requirements.
God answers prayer.
Scherie went into the bathroom to change into a nightgown from home.
There's a button I'm supposed to press when I see a seizure start so that they can easily mark the onset of activity even though they are recording 24 hours.
You know how a lie detector looks in the movies with all the needles on a rolling chart paper?
This is the same, only on a monitor.
Scherie was in the bathroom a couple minutes when she called out to me to press the button.
I looked in on her and she said she felt funny.
I went to call a nurse and when I came back she was standing at the sink with a strong grip on it.
The nurses came in and we got her to let go while we laid her on the floor.
The nurses gave her a color and object to remember. She didn't.
They asked her to give them a "thumbs up".
She did.
Then she asked what a "thumbs up" was.
We got her back to bed and settled in.
After a while she was perfectly coherent. We talked awhile and she said her head hurt.
I asked if she wanted an aspirin and she said yes, then no.
Then she started complaining that she really hurt bad, like her skin was on fire. That she'd never felt this way before.
Then she had another seizure.
The nurse and I talked her back and eventually she remembered where she was and could read the dry erase board with the date on it.
Even after doing that, she couldn't tell us what month it was, having just read it to us.
She then had another seizure.
I had asked earlier, after the first one, that we get her meds in her, but there was some delay in getting approval.
Now she got some adavan to knock down the seizure. Then some more.
She slept, but the EEG showed seizures so she got more for a total of 5 mgs.
Then the EEG leveled out.
Her blood pressure and O2 levels dropped so they put an oxygen tube up to her nose and pumped in saline solution to bring her BP up.

The neurology doctor team came in this morning and said that they certainly got a lot of information that they had to review.
They said they'd get back to us today but it's 5 PM and we haven't seen them yet.

A nurse came by and said it looks like we'll be out of here Sunday!

Sure beats spending Thanksgiving here.


 
Posted By Ed B
And I am grateful. Thanks to all who prayed or showed concern.

 


 
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